On 6 March 2019, SIOP Europe and CCI Europe presented the 2019 European Manifesto for the paediatric oncology and haematology community: “Beating childhood cancer: Cure more and cure better – Towards zero deaths and zero late effects” at the European Parliament.
See the list of MEPs supporting the childhood cancer policy agenda
The policy objectives for 2019-2024:
- Advance an enabling legislative environment for faster and more efficient development of affordable innovative medicines for children with cancer and other life-threatening diseases
- Foster allocation of resources to childhood cancer research with focus on big data and deep learning tools
- Promote sustainability of the European Reference Networks (ERNs), of which ERN PaedCan is dedicated to paediatric cancer, in particular to combat inequalities in access to the best available treatment and expertise for children across Europe
- Support collaborative efforts on the development and implementation of appropriate surveillance guidelines and long-term models of care for survivors of childhood cancer
- Encourage initiatives on interoperability, harmonisation and security of eHealth platforms to foster cross-border research and knowledge transfer for the benefit of childhood cancer patients and survivors
- Support initiatives that foster and promote patient advocacy and empowerment in research, healthcare, and socio-economic areas
MEPs who endorsed the Childhood Cancer Policy Priorities (2019-2024)
MEP Clara E. AGUILERA (ES,S&D) | MEP Geert Bourgeois (BE, ECR) | MEP Cristian Busoi (RO,EPP) |
MEP Olivier Chastel (BE, Renew Europe) |
MEP Giorgos GEORGIOU (GUE/NGL, CY)
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MEP Cristian Ghinea (RO, Renew Europe) |
MEP Theresa Griffin (UK, S&D) | MEP Francisco Guerreiro (PT, Greens/EFA Group) | MEP Irena Joveva (SL, Renew Europe) |
MEP Manolis Kefalogiannis (GR, EPP) | MEP Ewa Kopacz (PL, EPP) | MEP Marian-Jean MARINESCU (RO,EPP) |
MEP Roberta Metsola (MT,EPP) | MEP Tilly Metz (LU,Greens/EFA Group) |
MEP Alessandra Moretti (IT, S&D)
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MEP Lucia Ďuriš Nicholsonová (SK, ECR) | MEP Sirpa Pietikäinen (FI, EPP) | MEP Frederique Ries (BE, Renew Europe) |
MEP Michele Rivasi (FR, Greens/EFA) | MEP Annie Schreijer-Pierik (NL,EPP) | MEP Tomislav SOKOL (HR, EPP) |
MEP Patrizia Toia (IT, S&D) | MEP Veronique Trillet-Lenoir (FR, Renew Europe) | MEP Adina Ioana Vălean (RO, EPP) |
MEP Tiemo Wölken (DE,S&D) | MEP Željana Zovko (HR, EPP)
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This Manifesto is calling for the achievement of more and better cures for childhood cancer in line with specific objectives as defined in the SIOP Europe Strategic Plan – A European Cancer Plan for Children and Adolescents.
- Read the Press Release
- See the pictures of the Manifesto launch on 6 March at the International Childhood Cancer Awareness Day (ICCD 2019) event at the European Parliament
MEPs of 2014-2019 term and candidate MEPs
Organisations*
*Organisations that have endorsed the Manifesto so far. More expected and updates on this page will continue.
CONTACT DETAILS
SIOP Europe
Email: office@siope.eu
Tel: +32 2 880 62 82
Twitter: @SIOPEurope
CCI Europe
Tel: +43 1 402 88 99 – 15
Twitter: @CCI_Europe
Twitter: #ICCD2019 #BeatingChildhoodCancer