The SIOPE Strategic Plan: A European Cancer Plan for Children and Adolescents

Media Coverage:

• Childhood cancer: An urgent European problem. Published: 1 April 2019, The Parliament Magazine
• European Elections 2019: Beating childhood cancer. Published: 29 March 2019, Open Access Government
• A Manifesto to put childhood cancers high in the European agenda. Published: 11 March 2019, CancerWorld Magazine (European School of Oncology)
• Beating Childhood Cancer: Minimising deaths and late effects. Published: 6 March 2019, Health Europa
• Paediatric oncology: Equal access to childhood cancer medicines. Published: 21 February 2019, SciTech Europa
• Collaboration is key to improving the care of children with rare cancers. Published: 11 February 2019, The Parliament Magazine
• Caring for children in Europe with very rare tumours. Published: 18 November 2018, SciTech Europa
• 4 ways cancer is changing how we test medicines. Published: 18 October 2018, POLITICO
• ERN PaedCan facilitates effective cross-border healthcare. Published 14 September 2018, Government Gazette
• Improving the care of children in Europe with rare cancer. Published: 28 August 2018, Open Access Government
• Collaboration is key in tackling childhood cancer. Published: 11 July 2018, The Parliament Magazine
• The role of collaboration in tackling paediatric cancer. Published: 19 June 2018, Open Access Government
• Childhood Cancer: Benefiting from the best knowledge available in Europe. Published: 11 January 2018, The Parliament Magazine
• The provision of effective cross-border healthcare. Published: 19 December 2017, Open Access Government

Scientific Publications:

• Childhood cancer on the agenda. Published June 2019, The Lancet Haematology.
• Bone sarcomas: ESMO-PaedCan-EURACAN Clinical Practice Guidelines for diagnosis, treatment and follow-up. Published: 2018, Annals of Oncology.
• The ‘Survivorship Passport’ for childhood cancer survivors. Published: 20 August 2018, European Journal of Cancer, Volume 102, 69-81
• Survey on paediatric tumour boards in Europe: current situation and results from the ExPo-r-Net project. Published: 8 January 2018, Clinical and Translational Oncology (Springer)
• SIOPE Strategic Plan Report (Achievements 2016).
• The care of adolescents and young adults with cancer: results of the ESMO/SIOPE survey. Published: September 2017, Cancer Horizons (BMJ Journals)
• Orphan Drug Regulation: A missed opportunity for children and adolescents with cancer. Published online: August 2017  European Journal of Cancer, doi: 10.1016/j.ejca.2017.07.021
• From class waivers to precision medicine in paediatric oncology. Published: July 2017, The Lancet Oncology
• Identifying critical steps towards improved access to innovation in cancer care: a European CanCer Organisation position paper. European Journal of Cancer 82 (2017) 193-202
• April 2017: Steliarova-Foucher E et al., International incidence of childhood cancer, 2001-10: a population-based registry study, The Lancet Oncology, 2017 Apr 11. pii: S1470-2045(17)30186-9. doi: 10.1016/S1470-2045(17)30186-9
• ECCO Essential Requirements for Quality Cancer Care: Soft Tissue Sarcoma in Adults and Bone Sarcoma. A critical review. Critical Reviews in Oncology/Hematology, Volume 110, February 2017, Pages 94–105
• The Importance of Pediatric Drug Development: A Conversation with Pr. Gilles Vassal, Dr. Gregory Reaman, and Mr. Raymond Rodriguez-Torres, Published February 2017, Friends of Cancer Research
• September 2016: D. P. Stark, G. Vassal, Tumors in Adolescents and Young Adults, Karger Ed., doi:10.1159/isbn.978-3-318-05912-0
• July 2016: ‘Implementation of mechanism of action biology-driven early drug development for children with cancer’, Pearson et al., European Journal of Cancer, Volume 62, 124-131
• 7 April 2016: ‘The SIOPE Strategic Plan: A European Cancer Plan for Children and Adolescents’, G. Vassal, M. Schrappe, K. Pritchard-Jones, R. Ladenstein et al., Journal of Cancer Policy, doi: 10.1016/j.jcpo.2016.03.007
• 27 November 2014: ‘Creating a unique, multi-stakeholder Paediatric Oncology Platform to improve drug development for children and adolescents with cancer‘, G. Vassal et al., European Journal of Cancer, doi: http://dx.doi.org/10.1016/j.ejca.2014.10.029
• 7 April 2014,‘Challenges for Children and Adolescents With Cancer in Europe: The SIOP-Europe Agenda‘, G. Vassal et al., Pediatric Blood and Cancer, DOI: 10.1002/pbc.25044
• 2 December 2013, Towards reducing inequalities: European Standards of Care for Children with Cancer, J. Kowalczyk et al., European Journal of Cancer, Volume 50, Issue 3 , Pages 481-485
• December 2013, ‘Collaboration between doctors and nurses in children’s cancer care: insights from a European project’, P. Di Giulio, F. Gibson et al., European Journal Oncology Nursing, 17(6):745-9

Policy & Event-related Publications:

• 9 September 2017: ESMO 2017 Press Release: Study Identifies Factors that Limit Work Ability of Young Adult Cancer Survivors
• 7 June 2017: R. Ladenstein, A cross-border healthcare network to cure childhood cancers, European Parliament Magazine
• 9 March 2017: Cancer treatments ‘not being trialled in children’, BBC Health
• 9 March 2017: Seize chance to close EU loophole in childhood cancer treatments, say cancer experts, eCancer
• 3 March 2017: G. Vassal, Developing new drugs for children and adolescents with cancer, CancerWorld nr. 77
• March 2017: W.T. A. van der Graaf, D. Orbach, I. R. Judson, A.Ferrari, Soft tissue sarcomas in adolescents and young adults: a comparison with their paediatric and adult counterparts, The Lancet Oncology , Volume 18 , Issue 3 , e166 – e175
• February 2017: Kinder profitieren von mehr Forschung – German article about the EU Paediatric Medicines Regulation, Deutsches Ärzteblatt
• February 2017: Giving Children a Chance, B.inspired Brussels Airline Magazine
• February 2017: ECCO Essential Requirements for Quality Cancer Care: Soft Tissue Sarcoma in Adults and Bone Sarcoma. A critical review. Critical Reviews in Oncology/Hematology, Volume 110, February 2017, Pages 94–105
• February 2017: Innovative oncology drug development: Why not children?, pp. 26, Adjacent Government
• 7 February 2017: Rare cancers: A headache for policymakers, Euractiv.com
• 30 November 2016: A Paediatric Oncology Reference Network in Europe, Government Gazette
• 30 Nov 2016: M. Schrappe, Why more needs to be done to help children with cancer, Government Gazette
• 30 November 2016: G. Vassal, Innovative treatments and quality radiotherapy are essential, Government Gazette
• 30 November 2016: R. Riccardi, Delivering harmonised paediatric oncology training, Government Gazette
• 30 November 2016: Help us make a difference, Government Gazette
• October 2016: Making paediatric precision oncology a reality, The Lancet Oncology, DOI: http://dx.doi.org/10.1016/S1470-2045(16)30458-2
• 27 September 2016: A Brighter Future – The European Cancer Plan for Children and Adolescents, European Parliament Magazine Issue 440 Sept. 2016
• August 2016: Improving the long-term health of childhood cancer survivors, Adjacent Government
• August 2016: Voice of the Children – For the last five years SIOPE has been partnering with MEPs to raise awareness of child cancer, B.inspired Brussels Airline Magazine
• July 2016: Fighting for the Future – The European Society for Paediatric Oncology (SIOPE) is working to improve the quality of life for children and adolescents with cancer, B.inspired Brussels Airline Magazine
• July 2016: ‘Implementation of mechanism of action biology-driven early drug development for children with cancer’, Pearson et al., European Journal of Cancer, Volume 62, 124-1
• 31 June 2016: G. Vassal, M. Schrappe, R. Ladenstein et al., The SIOPE strategic plan: A European cancer plan for children and adolescents, Journal of Cancer Policy, Volume 8, pp 17–32, http://dx.doi.org/10.1016/j.jcpo.2016.03.007
• 30 May 2016: ‘Excellence in Radiotherapy for Children and Adolescents: the QUARTET Project‘, European Parliament Magazine
• 8 April 2016: R. Ladenstein, G. Schreier, SIOPE and ExPO-r-Net Project welcome forthcoming General Data Protection Regulation stance on health data, European Parliament Magazine
• 18 March 2016: J. R. Kowalczyk, M. Samardakiewicz, K. Pritchard-Jones, R. Ladenstein, S. Essiaf, E. Fitzgerald, G. Petrarulo, G. Vassal, European Survey on Standards of Care in paediatric oncology centres, EJC Volume 61, pp 11–19, doi:10.1016/j.ejca.2016.03.073
• 22 February 2016: P. O’ Donnell, EU struggles to meet ambitions for rare disease research, Politico magazine
• 11 November 2015: G. Vassal, Tackling cancer in children and adolescents, Adjacent Government Nov. 2015
• September – October 2015: Rerouted, not derailed: resuming a young life after cancer, CancerWorld, pages 48-53
• March 2015: Special Issue of the EONS Magazine dedicated to Paediatric Oncology
  • S. Essiaf,  ‘A close collaboration’, EONS Magazine (pp. 3)
  • G. Petrarulo, ‘A multi-professional partnership to improve childhood cancer care’, EONS Magazine (pp 10-13)
  • R. Haupt, ‘Survivorship Passport: a safe-conduct towards optimisation of long-term care’, EONS Magazine (pp. 14)
  • Neira Kameric, ‘The bright side of surviving cancer’, EONS Magazine (pp. 15-17)
  • S. Colomer-Lahiguera, ‘From bedside-to-bench-to-bedside: A journey from paediatric oncology nursing into basic research’, EONS Magazine (pp. 18-20)
• 27 November 2014: G. Vassal et al., ‘Creating a unique, multi-stakeholder Paediatric Oncology Platform to improve drug development for children and adolescents with cancer‘, European Journal of Cancer, doi: http://dx.doi.org/10.1016/j.ejca.2014.10.029
• July 2014:
  • M. Schrappe: Trialling the future in paediatrics, Pan-European Networks – Horizon 2020, pages 164-165
  • ENCCA cares, Pan-European Networks – Horizon 2020, pages 168-169
• 7 April 2014: ‘Challenges for Children and Adolescents With Cancer in Europe: The SIOP-Europe Agenda‘, Pediatric Blood and Cancer, DOI: 10.1002/pbc.25044
  
• January 2014: M. Gantschacher, ‘Clinical Research in 2013: Burning issues – Abstracts of the ENCCA Symposium in Vienna, 6th of June 2013 at the SFU’, Health Law and Science, Sigmund Freud Private University Vienna
  
• 30 September 2013:
  • G. Vassal: SIOPE: creating a brighter future, OncoPost, OncoPeople, nr. 1
  • D. Stark, S. Morgan: A revolution in progress: Improving Outcomes for Teenagers and Young Adults (TYA) with Cancer, OncoPost, OncoPeople, nr. 1
  • G. Vassal: A major need to increase access to innovative drugs for children and adolescents with cancer, OncoPost, OncoPeople, nr. 2
  • R. Haupt and ICCCPO: Harmonising follow-up on cancer patients – Childhood cancer survivorship: a passport for life, OncoPost, OncoPeople, nr. 2
  • D. Hargrave and R. Hough, Active participation in Long Term Follow Up: Empowering Survivors of Childhood and Adolescent Cancer, OncoPost, OncoPeople, nr. 2
  • R. Ladenstein, P.Kearns: The EU Clinical Trials Regulation: Improving clinical research for children and adolescents in Europe?, OncoPost, OncoPeople, nr. 3
  • J. Kowalczyk: Access to up-to-date best practice: Improving standards of care for children and adolescents with cancer across Europe, OncoPost, OncoPeople, nr. 3
• February 2013:
  • G. Vassal, C M. Zwaan, D. Ashley, M. C. Le Deley, D. Hargrave, P. Blanc, P. C Adamson, New drugs for children and adolescents with cancer: the need for novel development pathways, Lancet Oncology
  • K. Pritchard-Jones et al.: Sustaining innovation and improvement in the treatment of childhood cancer: lessons from high-income countries, Lancet Oncology
  • I. Magrath et al.: Paediatric cancer in low-income and middle-income countries, Lancet Oncology
  • R. Sullivan et al.: New policies to address the global burden of childhood cancers, Lancet Oncology
• October 2012: G. Vassal: A paediatric priority, Public Service Review 24
• June 2012: S. Rana: A new era in paediatric oncology?, EJC June 2012
• June 2012: M. Murawski: Międzynarodowe spotkanie onkologów dziecięcych (Gdańsk International Paediatric Liver Tumours Consensus Meeting in Conjunction with Annual SIOPEL Spring Meeting and ENCCA WP12 Group Meeting), Gazeta AMG nr 6/2012, 12-13
• 28 March 2012: R. Ladenstein, P. Kearns: Regulate to medicate, Public Service Review European Union 2012, Issue 23
• 30 November 2011: R. Ladenstein, D. Walker, G. Vassal: Trial, treat, triumph, Public Service Review European Union, Issue 22
• 12 July 2011: EP Workshop on Rare Cancers: The Added Value of Closer Cooperation
• March / April 2011: R. Ladenstein: Raising standards of care for our young patients, Cancer World, CoverStory
• 9 February 2011: K. Pritchard Jones et al.: The state of research into children with cancer across Europe: new policies for a new decade, eCancer, 2011, Volume 5, Art. 210
• February 2011: R. Ladenstein: Childhood Cancer Awareness Day: SIOPE addresses burning issues at EU Parliament on February 9 and promotes FP7-funded project ENCCA, The Parliament Magazine, Issue 321
• February 2011: R. Ladenstein: EU Profile: Fighting childhood cancer at EU level, Public Service Review European Union, Issue 21